As the LCH or ECD patient contacts with multiple care providers, the LCH adult clinic focus on the continuity of care by encompassing the ability of a patient to form a therapeutic relationship with the physicians of the clinic through several series of consultations, the level of centralised coordination, collaboration and follow-up. Moreover, our strategy involves the integration of care in order to provide a holistic perspective of the relationship between patients and doctors, based on the needs of each individual. Finally, we encourage the shared decision-making as we allow patients and healthcare professionals to make healthcare decisions together, in line both with patients’ preferences and values as well as with current scientific recommendations.